Tick, Tock, Tick, Tock…

Time. An odd concept. They say “time and tide wait for no man.” (I suppose the same can be said of woman, but it was written in a different age.) However time is indeed precious. When one is young it seems as though time is interminable and endless, a yearning chasm of desperately waiting. Waiting … Read more

Don’t Give Up

If you had little to no knowledge of the condition, and you were asked to imagine someone with Parkinson’s I’m fairly sure you wouldn’t think of me. I don’t fit the typical mould of someone who has this disease. Yet I don’t think anyone who hears those words “you have Parkinson’s” thinks “oh sure, that’s … Read more

I’d Rather Stay in Bed

Being told that you have an incurable disease is an unpleasant experience. Discovering that it’s degenerative even more so. The world expects. You’re expected to decline. You’re expected to not do well. You’re expected to be sick, take it easy. In addition age brings with it certain expectations. Weight gain, loss of mobility and ease … Read more

Constant Denial

It’s been a funny old week. I’ve been thrown in at the deep end a little at work, raised a good amount for charity and personally struggled with my own health. I mean, I know that I have something that officially is degenerative, but who wants to really admit that? I prefer to live in … Read more

Here We Go Again

image of Michael J Fox .

It’s that time of year when we in the Parkinson’s Community begin to talk of ‘doing something’ for World Parkinson’s Day (WPD). For the uninitiated, WPD is 11th April, which is James Parkinson’s birthday. On this most auspicious day there may be campaigns. Parkinson’s UK is urging people to ‘turn it blue’ and dress in … Read more

Life is Complicated

image shows sign that reads "public road ends" with fields leading to mountains beyond. there is a peak that is covered in a glacier. submissive and a clear blue sky. image shows sign that reads "public road ends" with fields leading to mountains beyond. there is a peak that is covered in a glacier. submissive and a clear blue sky. in

I’m back in bed after doing a 20 min yoga session. Honestly, the amount of times I’ve started a health exercise regime is embarrassing but they say hope springs eternal. Every day is a new beginning etc etc. So there I was, lying like the proverbial beached whale, hugging my knees to my chest wondering … Read more

Live Life Well

an inflatable white unicorn tied to a tree

It has been a while, but with good reason. The start of 2024 was not in any way a good one. I cannot enter into details, it’s still too raw. Yet suffice to say it was an all too stark reminder of the fragility of life. It also served as a reminder that living life … Read more