image of kitty in a red hat in a field of sunflowers.

Just Another Person With Parkinson’s

Posted 3 CommentsPosted in blog, motivational, Parkinson's disease, public speaker

This week I completed a set of questions for Parkinson’s Life magazine. It got me thinking about how people perceive those with Parkinson’s Disease.   My talks cover that off too of course, and it’s something I’ve pondered myself. I sometimes wonder what my friends truly think of this, and my efforts to continue life as normally as possible. I know some of them think I’m crazy. Some of them think I’m deluded and I’ll drop dead early, and some of them think it’s great and I’m going to be just fine regardless of my affliction. In the end it doesn’t really matter what any of them think. This is ultimately my fight, my battle. Not only physically, but mentally. It would be oh so easy to simply give in. Instead I’m at the gym most days, and despite my fear of falling over my own feet, today I have vowed to get out and go running again. Stealth Fighter I hate running. But I hate Parkinson’s more. I despise this thing that’s taken me by surprise. Stealthily trying to hold me back, contain my body and with it, my spirit and drive to succeed. I hate going to the gym, […]

silhouette of person outstretched arms on a boulder

You don’t have to climb a mountain or rock to be amazing. (But it does make a great picture.)

Posted Leave a commentPosted in blog, motivational, public speaker

This week is about impostor syndrome and motivation. And the very real fact that occasionally we get stuck because of ourselves. It’s crazy. If your friend came up with a great idea you’d tell them to just get on with it. But when we have a good idea ourselves, what do we do? We sit on it. We throw barriers and issues into our own paths and procrastination becomes the order of the day. “we can’t because…” and that idea slowly slips away, or worse, you see someone else carrying out a similar one and being amazingly successful. What can we do about it? It’s an easy thing to say, but a harder thing to do, but forcing yourself to sit down and set some real goals and ambitions is vital. I’ve had an idea for some time to boost my profile in and around the Kāpiti Coast where I live. What have I done with it so far? Nothing. Nada. Zip. What am I afraid of? Will people laugh at me? (Well, I’m also a comedian, so you know, hopefully!) Will they think I’m daft / stupid / foolish / insert negative emotion here. At heart we’re scared of […]

kitty in a floral dress speaking to an audience of people.

Don’t Panic!

Posted Leave a commentPosted in blog, motivational, Parkinson's disease, Uncategorized

Crowding In I had the absolute pleasure of speaking at the Combined Probus Club of Kapiti today , and what a wonderful group of people they are. They certainly turned up in force, over one hundred and forty people packed into the lounge area of the Coast Community Church building to hear what I had to say. No Pressure It’s sometimes daunting to speak to a large number, especially when you are aware that some of them suffer from the very affliction that you’re there to impart your wisdom on, but I love what I do, and was determined to not allow the words of Keith who introduced me, put me off. What lovely words too, he described me as “the most amazing woman I have ever met, aside from my wife of course!” High praise indeed. No pressure. Added to that his wife has been diagnosed with Parkinson’s for about six years, and he has a degree in neuro-science. Did I mention there was no pressure?! Flying High They laughed, they groaned, they gave me the most wonderful feedback. I appear to be collecting gift boxes too. I received a beautiful Kapiti Goodies box, I’m sure that will go […]

image of kitty smiling into the camera with red flowers in the background.

Recovered

Posted 1 CommentPosted in blog, motivational, Parkinson's disease, public speaker, Uncategorized

Holidays Are For: Ah. Public holidays. When the nice thing to do is visit a park with your family, do something lovely or just spend time together. We spent time together. Sorting laundry, ironing and catching up on housework. Nobody ever lay on their death bed and lamented they didn’t spend more time cleaning, but it is nice to have a shiny house. Scouting Strife I also had a word with myself and realised it had been just a tiny bit longer than a month since my last blog post. So much for monthly. Though to be fair, I’ve had a double birthday, Christmas, the 22nd Scout Jamboree and a family camping trip to contend with. You don’t want to go camping a few days after you’ve spent eleven days camping with 3,500 Scouts. Just saying. Trust me on that one. The holiday was fun but fraught with issues such as “I’m really tired.” And I was delighted to see my own bed again. Sweat It Baby I also made it back to the gym, which was great. I think. Only I could spend 12 months at the gym and not actually look any better. I think there’s a lesson […]

an endless body of water during daytime.

Turmulent Times

Posted Leave a commentPosted in blog, grief, public speaker

It’s been a strange week. Full of ups and downs. The downs have been quite deep to be honest, but like all bad – terrible – news, in this case I have thought long and hard about what it means for me and my life. Last week I discovered a friend of mine had suddenly died. For this piece I’m going to call her Amy, (not her real name). The rush of grief was overwhelming. I’d not felt anything like that in such a long time. I was taken by surprise, side-swiped by the sheer shock of it all. I cried and cried and felt strangely numb. Later, I wondered if I had the ‘right’ to be so upset. Another friend, similarly saddened, felt the same way. How we deal with grief is strange. We still don’t really do it very well. Why is it that we feel that only the immediate family has the right to be affected by the sudden and untimely death of a person? We live with our spouses and children, and of course they are our number one concern. However, we also choose to spend time with others, we socialise, have friends, and spend more […]

multi coloured plastic straws

The Last Straw

Posted Leave a commentPosted in blog, environment, plastic, public speaker

This is going to be a bit of a rant. I’m very passionate about the environment. I always have been. I don’t see that being modern, technological and up to date can’t also mean loving trees and the world in which we live. I’ve never understood why people think that to want to recycle and reuse things means that you need to look like a grungy version of an awful scarecrow. But I digress. My main complaint at the moment is people that want to stop us using plastic. Now don’t get me wrong, I’m all for removing the vast amounts of plastic that we have plaguing the planet, but it angers me when we’re consistently targeting the wrong people. The general public have long been blamed for wanting things wrapped up in filmy material. But I don’t believe that that is true. Supermarkets have long been doing whatever they can to buy in bulk and sell as much as they can to us with no thought or consideration for either the environment or the consumer. If you buy the marketing spiel that they care about either then you’re deluded. They’re there to make money. Lots of it. However they […]

an unmade bed with a white quilt in a dim room.

Friday Musing

Posted Leave a commentPosted in blog, Parkinson's disease

It’s the first Friday back in NZ. I never thought I would be so delighted to see our (not so) little yellow house and my own bed. The realities of being apart from half of our whanau for so long were brutally painful. Mr 12, a real homebody, missed his siblings and father far more than he thought, Miss 14 said she always felt something was missing, and I struggled to hold them all together and positive. However, the biggest thing I realised I missed has been my exercise. Trapped in tiny houses, not the fashionable ones, the ones they have in the UK (and for some reason stuff to the gills with pointless unused furniture), I found it nigh on impossible to find the room to even take two steps, never mind my physio routine for my Parkinson’s. Coming back I realise my arm feels more like a dead weight than ever and I’m dragging my leg more easily. Back to the gym with me later today, hoping a return to my usual 4 times a week routine of basically almost anything strenuous will help me return to a better, fitter me. A Teaspoon of Sugar? Mr 14 remarked […]

Not the Funniest Jokes

Posted Leave a commentPosted in blog, comedy, Parkinson's disease

Goodness it’s been a funny week. As in, strange, as in, not comedic. I had a spot at the Cavern Club’s open mic night, at which I planned to perform some new material I’d been working on. I was a little reticent. This material was going to be different. I had finally written about living with Parkinson’s Disease. How do you turn a disabling disease into a set of six-minute funny jokes? Not always the easiest thing to do. Still, with a sprinkling of Kitty magic and a lot of perseverance I like to think I pulled it off. Just enough of the serious mixed in with the hilarity that has come to be my life. A Dark Turn But there were some others talking about something that I found very uncomfortable. Should there be limits to what we deem acceptable? I mean, I understand that this was an open mic night and you can expect anything, but where do you the draw the line? I wasn’t going to a Frankie Boyle gig – in fact, as a comedian you’re warned not to be offensive by the venue. However: some people were talking about suicide. Topical? Yes. Appropriate? I don’t […]