We all know that Parkinson’s is cruel. However it can be cruel in the most unexpected of ways. Whilst on this unpleasant and unwanted navigation of life with Parkinson’s I have learned some occasionally uncomfortable things about myself. I am writing specifically about my lack of sympathy and concern for those around me that become … Read more
Getting on with one’s life after a diagnosis of Parkinson’s is strange. There is the inevitable sadness, feelings of loss, confusion. I could go on with the negative stuff but it drags me down. Then there’s the good stuff. Yes, there is good stuff, but you might need to look a little harder for that. … Read more
Last week I visited the neurology department at my hospital. I saw a different doctor (again) and two lovely medical students from the University of Otago. It was a visit I had not been looking forward to at all. I am sorry to report that it met my expectations in that I left in a … Read more
It’s almost World Parkinson’s Day. It’s something big on my calendar yet I’m sure to most people it’s ‘just another awareness day.’ In the six years I have had this disease I have seen the Covid-19 pandemic sweep the world and an effective vaccination program created and rolled out worldwide. Yet the drugs I am … Read more
Good old Facebook, always there, ready to surprise you with that memory option. I was going to write about feminism, nothing to do with Parkinson’s at all. I can hear some sighs already. Don’t worry. Facebook put paid to that as it reminded me six years ago I visited the hospital for the first time … Read more
I’ve put off writing about this for some time. It’s tricky. I have wanted to work it through in my head but I don’t want to upset anyone with what I say. I’m going to write about my recent decision to do something many people have thought is ridiculous, rash, stupid and completely crazy. You … Read more
Remember I’d said that I’d written a piece about the way people with Parkinson’s (pwp) were depicted? I was worried about possible implications if I posted it, yet once again I found myself cut adrift, alone, and wondering what more could possibly come along to cause me strife. (Actually, there’s always more, you have to … Read more
I had written a great piece about people with Parkinson’s (pwp) and how the media portrays them, however, I’m also worried it is a potential political nightmare. For now, I’m keeping it under wraps. Instead I’m going to talk about the struggle to know what the right thing is when you’re stumbling through the dark … Read more
I was to write you a nice post about something other than Parkinson’s today. However, those lovely people at Parkinson’s Life sent me this lovely article. It’s especially nice as I’m in it, and my lovely friend Emma from The Parky Ninja. Enjoy. You can find the article HERE. Also on Parkinson’s Life is this … Read more
And so. I have become another victim of the Covid-19 economic downturn. I received a phone call about the job I had been told I was successful for. The one that they needed filling immediately. The one that was still needed, but slightly delayed due to level 4. Perhaps Mid May. Yes. All being well … Read more