red haired woman in grey hoodie and glasses looking crossly into the camera with folded arms.

Still Fighting

Posted Leave a commentPosted in blog, Parkinson's disease, public speaker

Remember I’d said that I’d written a piece about the way people with Parkinson’s (pwp) were depicted? I was worried about possible implications if I posted it, yet once again I found myself cut adrift, alone, and wondering what more could possibly come along to cause me strife. (Actually, there’s always more, you have to keep smiling!) It made me realise that there really is only you. You depend on you. Because when it gets right down to it, nobody will ever have your back quite like yourself. Cynical? Sure. But after the last few weeks I’ve had, it’s the position I find most realistic. To hell with repercussions, I’m angry. I’m really angry. I won’t be told to pipe down and keep quiet, and here is the piece I wrote. I’ve been thinking a lot recently about the way people with Parkinson’s (pwp) are often portrayed in the media. It’s a subject clearly close to my heart. When I first heard that I myself had Parkinson’s Disease the very first words out of my mouth were “isn’t that like, really bad?” I thought I was going to die. Well. We’re all going to die, but I certainly imagined my […]

cartoon image of a woman with a child in her arm.

World Domination Draws Closer

Posted Leave a commentPosted in blog, NZLockdown, Parkinson's disease

I was to write you a nice post about something other than Parkinson’s today. However, those lovely people at Parkinson’s Life sent me this lovely article. It’s especially nice as I’m in it, and my lovely friend Emma from The Parky Ninja. Enjoy. You can find the article HERE. Also on Parkinson’s Life is this awesome video from Christine Jeyachandran  It might also feature a certain recognisable Yorkshirewoman. Yes. My quest for World Domination is well underway.  

world map in green bordered by the faces of people from the video.

Inspire, Work Hard, Get Results

Posted Leave a commentPosted in blog, Parkinson's disease, public speaker

Right now I’m finding it hard to type. My left hand is annoyingly unresponsive without a little extra oomph from me. It’ll come good in a bit, I recently took my tablets. I’m still bad at taking them on time. It’s not that I don’t know I have to, it’s more like a silent rebellion. “I don’t need you! I can do this, look I’m actually doing really well.” Then it’s like hitting a wall. Erk. Rats. If I hadn’t waited I wouldn’t have crashed and now wouldn’t be waiting for the most unattractive / desirable coming ‘up’ there is. Though of course for those of us with Parkinson’s, ‘coming up’ is exactly what we want. We need those little suckers to do the trick and help make our bodies move again. But I talked of this a couple of weeks ago, you don’t need to hear that again, do you?   Last week saw the end of Parkinson’s Awareness Month. Irritatingly overshadowed by this thing called Covid-19. Not to let a little thing like a global pandemic get in our way, we’ve still tried to do bits here and there. I was stoked to be asked to join in […]

image of kitty in a red hat in a field of sunflowers.

Just Another Person With Parkinson’s

Posted 3 CommentsPosted in blog, motivational, Parkinson's disease, public speaker

This week I completed a set of questions for Parkinson’s Life magazine. It got me thinking about how people perceive those with Parkinson’s Disease.   My talks cover that off too of course, and it’s something I’ve pondered myself. I sometimes wonder what my friends truly think of this, and my efforts to continue life as normally as possible. I know some of them think I’m crazy. Some of them think I’m deluded and I’ll drop dead early, and some of them think it’s great and I’m going to be just fine regardless of my affliction. In the end it doesn’t really matter what any of them think. This is ultimately my fight, my battle. Not only physically, but mentally. It would be oh so easy to simply give in. Instead I’m at the gym most days, and despite my fear of falling over my own feet, today I have vowed to get out and go running again. Stealth Fighter I hate running. But I hate Parkinson’s more. I despise this thing that’s taken me by surprise. Stealthily trying to hold me back, contain my body and with it, my spirit and drive to succeed. I hate going to the gym, […]

an unmade bed with a white quilt in a dim room.

Friday Musing

Posted Leave a commentPosted in blog, Parkinson's disease

It’s the first Friday back in NZ. I never thought I would be so delighted to see our (not so) little yellow house and my own bed. The realities of being apart from half of our whanau for so long were brutally painful. Mr 12, a real homebody, missed his siblings and father far more than he thought, Miss 14 said she always felt something was missing, and I struggled to hold them all together and positive. However, the biggest thing I realised I missed has been my exercise. Trapped in tiny houses, not the fashionable ones, the ones they have in the UK (and for some reason stuff to the gills with pointless unused furniture), I found it nigh on impossible to find the room to even take two steps, never mind my physio routine for my Parkinson’s. Coming back I realise my arm feels more like a dead weight than ever and I’m dragging my leg more easily. Back to the gym with me later today, hoping a return to my usual 4 times a week routine of basically almost anything strenuous will help me return to a better, fitter me. A Teaspoon of Sugar? Mr 14 remarked […]