Words From My Sleepless Bed

woman in a park crossreoads

I have been thinking about what to say to you. I have been lying awake (it’s 3am) feeling guilty I’ve not replied, but wondering what are the right words? It’s hard when you’re newly diagnosed. scratch that, it’s still hard now. That sudden shock. The painful realisation that this thing you’d hoped was ‘just a … Read more

Ripple Effect

image of alex flynn, man smiling with dark hair and an orange top.

We’ve all heard those adages about the simple act of dropping a small stone or pebble into a lake causing ripples far and wide. There’s another one about a butterfly flapping its wings in the forest. Basically, they say that each interaction that you have with everything changes it irrevocably. It’s forever changed, even if … Read more

Jealousy and Parkinson’s

two green angry eyes

We all know that Parkinson’s is cruel. However it can be cruel in the most unexpected of ways. Whilst on this unpleasant and unwanted navigation of life with Parkinson’s I have learned some occasionally uncomfortable things about myself. I am writing specifically about my lack of sympathy and concern for those around me that become … Read more

Keep On Rolling Along

A few weeks ago I was convinced to try roller-skating. I had been watching my daughter skate around the cul-de-sac where we live and thought it looked like a lot of fun. My son wanted to skate too, and his skates fitted me, so my children suggested I give it a go. I lasted about … Read more

Change of Tack

kitty fitton - a strong woman

Getting on with one’s life after a diagnosis of Parkinson’s is strange. There is the inevitable sadness, feelings of loss, confusion. I could go on with the negative stuff but it drags me down. Then there’s the good stuff. Yes, there is good stuff, but you might need to look a little harder for that. … Read more

New Normal

woman with red hair clutching a yellow pole and laughing

Last week I visited the neurology department at my hospital. I saw a different doctor (again) and two lovely medical students from the University of Otago. It was a visit I had not been looking forward to at all.  I am sorry to report that it met my expectations in that I left in a … Read more

No Thanks For The Memories

image shows facebook post

Good old Facebook, always there, ready to surprise you with that memory option. I was going to write about feminism, nothing to do with Parkinson’s at all. I can hear some sighs already. Don’t worry. Facebook put paid to that as it reminded me six years ago I visited the hospital for the first time … Read more

Going it Alone

blue skies with a small fluffy cloud and sunshine rays pouring in from the right.

I’ve put off writing about this for some time. It’s tricky. I have wanted to work it through in my head but I don’t want to upset anyone with what I say. I’m going to write about my recent decision to do something many people have thought is ridiculous, rash, stupid and completely crazy. You … Read more

Still Fighting

red haired woman in grey hoodie and glasses looking crossly into the camera with folded arms.

Remember I’d said that I’d written a piece about the way people with Parkinson’s (pwp) were depicted? I was worried about possible implications if I posted it, yet once again I found myself cut adrift, alone, and wondering what more could possibly come along to cause me strife. (Actually, there’s always more, you have to … Read more