red haired woman in grey hoodie and glasses looking crossly into the camera with folded arms.

Still Fighting

Posted Leave a commentPosted in blog, Parkinson's disease, public speaker

Remember I’d said that I’d written a piece about the way people with Parkinson’s (pwp) were depicted? I was worried about possible implications if I posted it, yet once again I found myself cut adrift, alone, and wondering what more could possibly come along to cause me strife. (Actually, there’s always more, you have to keep smiling!) It made me realise that there really is only you. You depend on you. Because when it gets right down to it, nobody will ever have your back quite like yourself. Cynical? Sure. But after the last few weeks I’ve had, it’s the position I find most realistic. To hell with repercussions, I’m angry. I’m really angry. I won’t be told to pipe down and keep quiet, and here is the piece I wrote. I’ve been thinking a lot recently about the way people with Parkinson’s (pwp) are often portrayed in the media. It’s a subject clearly close to my heart. When I first heard that I myself had Parkinson’s Disease the very first words out of my mouth were “isn’t that like, really bad?” I thought I was going to die. Well. We’re all going to die, but I certainly imagined my […]

silhouette of the face and shoulders of a person of indeterminate gender.

Impostor Syndrome

Posted Leave a commentPosted in blog, NZLockdown, Parkinson's disease

I think it’s time for a little honesty. For a start off, I’ve recently been described as a blogger. Well, that would be great, but it’s hardly true. I’m not nearly dedicated enough to write almost half as often as I should. Second, stereo-typically I’m a tortured soul. Many of us are. But this time I’m finding more torturous than usual. Quite frankly, I’m not coping very well with the current lockdown in NZ. I know I’m not alone. We’ve all learned to Zoom / Skype / Facebook chat / Hangout but let’s be honest, it’s nothing like the real thing. Some of us have flouted rules and accidentally seen our friends at the beach or the supermarket car park. We’ve kept the prerequisite distance, but it’s still so odd to not be able to be close to our friends. We’re social creatures. It’s tough to stay home. My housework has taken off, the garden is looking fabulous. The children are playing heaps of games together. I’ve even exercised daily, thanks to the awesome local gym owner who loaned me some equipment just before everything ground to a halt. But I feel kind of desolate. Kind of strange and disconnected. […]