Eight years ago I bought a house with my husband. We moved in, had to clean a lot of it, (who moves out of a house and leaves it dirty?) ate pies for lunch and bought what the children call ‘the really good pizza’ for dinner. It’s almost to the day that we got the keys to the house I’d dreamed of. Good indoor / outdoor flow, great for parties. Six bedrooms, though one was really more an office. But still. Six! Count them! Two bathrooms. A rumpus room for the children to use when they’re teenagers. It cost a bit more than we wanted, but Oh! The space. The memories we’ll create. The children will grow up here. We will grow old here. We couldn’t believe our luck. We loved our home. And for a while, we were happy. Today marks almost eight years to the day that we moved into that house. My husband even lifting me over the threshold of the door. Kind of. I took photographs of our twins, three years old at the time. So tiny. I vowed I would take pictures of them by the front door on the same date every […]
I’ve put off writing about this for some time. It’s tricky. I have wanted to work it through in my head but I don’t want to upset anyone with what I say. I’m going to write about my recent decision to do something many people have thought is ridiculous, rash, stupid and completely crazy. You see, to the world I was happily married. We were the perfect couple. A bit mismatched in areas, but they say that makes things interesting. My husband was supportive and kind. I had no reason to actually find paid employment and enjoyed looking after my children at home. Yet I was unhappy. My husband was – is – a good man. He’s a great father and is a very kind person. Yet we were moving in opposite directions. For a long time, but especially since I was diagnosed with Parkinson’s I felt as though I wanted to grab life by the horns and run with it as fast as I could. Experience everything. Feel the wind in my hair. Watch the sunset on the beach. Swim in the sea, ride my bike as fast as I could along long sweeping pathways. Climb mountains (well I […]
I’m a Professional Public Speaker. I want to write about being a professional public speaker. I’d like to avoid discussing living with young-onset Parkinson’s. This was never supposed to be a blog about Parkinson’s Disease. It was supposed to be about my comedy, my MC (Mistress of Ceremonies) skills and of course, my ability to hold an audience in the palm of my hand whilst I encourage, motivate and inspire people. However. Here it is again. The things people say to you when they discover you have this. What will it take for people to realise we’re not written off and ready for the scrap heap? Once again this week I had a conversation with someone about life in general. It came up of course. It always does. You might have noticed that I’m not shy about it. Anyhow. There it was. “Oh yes, you have Parkinson’s, don’t you?” someone commented. “Yes I do” I replied. They proceeded to tell me about their friend whose husband has Parkinson’s. How you couldn’t tell at all whilst he was in his forties, yet gosh, it really took hold in his fifties you know. He’s had to go into a home now. But […]
Remember I’d said that I’d written a piece about the way people with Parkinson’s (pwp) were depicted? I was worried about possible implications if I posted it, yet once again I found myself cut adrift, alone, and wondering what more could possibly come along to cause me strife. (Actually, there’s always more, you have to keep smiling!) It made me realise that there really is only you. You depend on you. Because when it gets right down to it, nobody will ever have your back quite like yourself. Cynical? Sure. But after the last few weeks I’ve had, it’s the position I find most realistic. To hell with repercussions, I’m angry. I’m really angry. I won’t be told to pipe down and keep quiet, and here is the piece I wrote. I’ve been thinking a lot recently about the way people with Parkinson’s (pwp) are often portrayed in the media. It’s a subject clearly close to my heart. When I first heard that I myself had Parkinson’s Disease the very first words out of my mouth were “isn’t that like, really bad?” I thought I was going to die. Well. We’re all going to die, but I certainly imagined my […]
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I was to write you a nice post about something other than Parkinson’s today. However, those lovely people at Parkinson’s Life sent me this lovely article. It’s especially nice as I’m in it, and my lovely friend Emma from The Parky Ninja. Enjoy. You can find the article HERE. Also on Parkinson’s Life is this awesome video from Christine Jeyachandran It might also feature a certain recognisable Yorkshirewoman. Yes. My quest for World Domination is well underway.
And so. I have become another victim of the Covid-19 economic downturn. I received a phone call about the job I had been told I was successful for. The one that they needed filling immediately. The one that was still needed, but slightly delayed due to level 4. Perhaps Mid May. Yes. All being well around there. But no. Ah. The dangers of working (potentially) for a charity or non-profit. Lack of resources. Full restructure. Employment freeze. And I get it. Of course I do. But I wanted that role so badly. For so many reasons, both selfish (I need a job – I need the money badly) and also altruistically. (It was a position where I could have helped others very much.) But it is not to be. Possibly. In a few months. After the restructure. They may call. They may not. I have to rethink. There has been much to rethink recently. And so. Back to the drawing board and trawling employment sites and looking for suitable roles. The issue here is of course gaining attention. I’m told I’m over qualified for some, but under qualified for others. Usually this is recruiter-speak for ‘not currently employed’ or […]
Right now I’m finding it hard to type. My left hand is annoyingly unresponsive without a little extra oomph from me. It’ll come good in a bit, I recently took my tablets. I’m still bad at taking them on time. It’s not that I don’t know I have to, it’s more like a silent rebellion. “I don’t need you! I can do this, look I’m actually doing really well.” Then it’s like hitting a wall. Erk. Rats. If I hadn’t waited I wouldn’t have crashed and now wouldn’t be waiting for the most unattractive / desirable coming ‘up’ there is. Though of course for those of us with Parkinson’s, ‘coming up’ is exactly what we want. We need those little suckers to do the trick and help make our bodies move again. But I talked of this a couple of weeks ago, you don’t need to hear that again, do you? Last week saw the end of Parkinson’s Awareness Month. Irritatingly overshadowed by this thing called Covid-19. Not to let a little thing like a global pandemic get in our way, we’ve still tried to do bits here and there. I was stoked to be asked to join in […]
Once again this week I found myself the centre of attention. Well, in a group that gained attention. OK. I was probably the least qualified person in the group to be there, but it appears I managed to wriggle in and find another opportunity to talk about myself to the world. How? I managed to pick up a gig hosting an online quiz for the wonderful people at Good Bitches Baking (GBB). If you’re not familiar with the work of the GBB (not to be confused with The GBB of the Great British Bakeoff) they’re basically really nice people of any particular variation you like (yes, men are welcomed with open arms) that volunteer to bake sweet treats for local deserving people / charities / daycentres etc. It’s been a tough old time for them at the moment, as they’re all trapped inside baking for their families and have nowhere to pass it on. I fear for many people’s waistlines. Their aim is to make Aotearoa the kindest place on Earth. Who can have a problem with that? So look past the word and see it for the good it brings. Yes. I’m talking about baking. Not always easy for […]
I think it’s time for a little honesty. For a start off, I’ve recently been described as a blogger. Well, that would be great, but it’s hardly true. I’m not nearly dedicated enough to write almost half as often as I should. Second, stereo-typically I’m a tortured soul. Many of us are. But this time I’m finding more torturous than usual. Quite frankly, I’m not coping very well with the current lockdown in NZ. I know I’m not alone. We’ve all learned to Zoom / Skype / Facebook chat / Hangout but let’s be honest, it’s nothing like the real thing. Some of us have flouted rules and accidentally seen our friends at the beach or the supermarket car park. We’ve kept the prerequisite distance, but it’s still so odd to not be able to be close to our friends. We’re social creatures. It’s tough to stay home. My housework has taken off, the garden is looking fabulous. The children are playing heaps of games together. I’ve even exercised daily, thanks to the awesome local gym owner who loaned me some equipment just before everything ground to a halt. But I feel kind of desolate. Kind of strange and disconnected. […]